| Stigma, Identity
and Human Rights
The Experience of Leprosy in the Era of HIV/AIDS
Robben Island, South Africa
4-6 February 2005
Thursday, February 3: The Journey -- Arrival at Robben
Island
“. . . journeying to Robben Island was like going to another
country.
Its isolation made it not simply another prison, but a world of
its own,
far removed from the one we had come from. In Pretoria we felt
connected to our supporters and our families; on the island, we
felt
cut off, and indeed we were. We had the consolation of being with
each other, but that was the only consolation.” – Nelson
Mandela
Friday, February 4: Banishment, Isolation, Resistance &
Remembrance – Interacting With Robben Island’s History
Welcome
Introduction to the History of Robben Island – Robben Island
Museum
“Robben Island’s notorious history as the place to
which so-called undesirables of our society were banished . . .
should be turned around
into a source of enlightenment and education on the danger of myopic
philosophies, social and economic practices whose primary and sole
objective is the oppression of one group by another.” –
Robben Island Museum
Banishment: The Welfare of Society versus The Rights of Individual
Freedom
Chairs: Dr. Harriet Deacon & Anwei Law
Panel: Ryohei & Suiko Shibata, Sigurd Sandmo,
Jose Ramirez, Jr., Olivia Breitha
Isolation: The Experience of Isolation
Chairs: Dr. Jo Robertson & Clarence Kahilihiwa
Panel: Crescencio T. Rosello, Dr. Arturo Cunanan,
Miyoji & Mieko Morimoto, Keteng Feng, Clint Anabieza, Dr. Michael
Chen
Resistance: Retaining Identity in the Face of Oppression
Chairs: Yasuji Hirasawa & Simonne Horwitz
Panel: Arega Kassa Zelelew, Artur C.M. De Sousa,
S.K. Jung, Rep. of Treatment Action Campaign
Remembrance: The Cemetery -- IDEA Banner of Honor
Dr. P.K. Gopal and Zilda Borges
Saturday, February 5: Stigma & Identity
9:00-9:30 Opening Address: Noerine Kaleeba, Partnerships Adviser,
UN AIDS
“I struggled to understand this stigma that was related
to HIV. Because for us, as a race, and I think this cuts across
humanity, we always valued the fact that in times of strife we remained
together and shared our sorrows . . . . When AIDS came on the horizon
it was the first time I saw people being brought to hospital and
being left there without the family returning at all . . . . And
that was one of the most profound manifestations of the stigma .
. .”
-- Noerine Kaleeba, who founded “The AIDS Support Organization”
in Uganda in
1987, which was one of the very first community responses to AIDS
in Africa
9:30-11:00 Culture, Identity & Stigma: The African Experience
Chairs: Professor Megan Vaughan and Arega Kassa Zelelew
Panel: Dr. Jean-Paul Bado, Linda Beer Kumwenda, Dr. John Manton,
Jan Mahlangu
11:00-11:30 Morning Tea Break
11:30-12:45 The Effect of Stigma on Individuals and Families
“One person’s family history may not be very significant,
except to his/her immediate family. However, when family history
is taken away, that individual ceases to exist in the eyes of society.
Collectively, when the identity is stripped away from millions of
individuals diagnosed with leprosy, the end result is that stigma
and prejudice take the place of their existence.” -- Jose
Ramirez, Jr.
Chairs: Jose Ramirez, Jr. & Clement Mufuzi
Panel: Kofi Nyarko, Magdalena Ramirez, Dr. Harriet Deacon, Saruto
Labbo, Amar Timilsina, Adi Yosep, Jaimie Tomas
Cabeto
12:45 – 2:00 Lunch
2:00-3:30 Breaking the Silence: Women & Stigma
Chairs: Zilda Borges and Noerine Kaleeba
Panel: Natalia Isabel da Graca Marcal, Zoica Bakirtzief, Tiruwork
Mengistu, Member of the Sinikithemba Choir, Birke Nigatu
3:30-4:00 -- Afternoon Tea Break
4:00- 5:30 Illuminating Ourselves: Redefining Traditional Images
Open discussion – The role of images in the formation of
attitudes.
Achievements of people affected by leprosy or living with HIV/AIDS,
past and present as a means of challenging stereotypes and the stigma
that is perpetuated by them. From Ingeborg Grytten (Norway, 17th
century) to Akashi Kaijin (Japan, early 20th century) to the Present.
Sunday, February 6 – Human Rights
9:00-9:15 Universal Human Rights -- Professor Bernardino Fantini
9:15-10:30 Ensuring the Rights of Humanity
Chairs: Professor Bernardino Fantini & Dr. P.K. Gopal
Panel: Alhaji Shehu Sarkin Fada, Chamada Abibo,Yasuji Hirasawa,
Matthew Maury, Clement Mufuzi
10:30-11:00 Morning Tea
11:00-12:00 In Conclusion: History as an Agent for Social Change
Prof. Megan Vaughan, Noerine Kaleeba and Zilda Borges
12:00-12:30 Closing
“It was during those long and lonely years that my hunger
for the freedom of my own people became a hunger for the freedom
of all people . . . . We pledge ourselves to liberate all our people
from the continuing bondage of poverty, deprivation, suffering,
gender, and other discrimination . . . . to be free is not merely
to cast off one’s
chains, but to live in a way that respects and enhances the freedom
of others.” – Nelson Mandela
12:30-2:00 Lunch
2:00 Departure |